2022

Lake, J., Volpe, T., St. John, L., Thakur, A., Steel, L., Baskin, A., Durbin, A., Chacra, M.A., and Lunsky, Y. (2022). Mental health and COVID-19: The impact of a virtual course for family caregivers of adults with intellectual and developmental disabilities. Journal of Intellectual Disability Research. https://doi.org/10.1111/jir.12965

St. John, L., Volpe, T., Jiwa, M.I., Durbin, A., Safar, Y., Formuli, F., Thakur, A., Lake, J., and Lunsky, Y. (2022). ‘More together than apart’: The evaluation of a virtual course to improve mental health and well‐being of adults with intellectual disabilities during the COVID‐19 pandemic. Journal of Applied Research in Intellectual Disabilities. https://doi.org/10.1111/jar.13024. 

Lunsky Y,  Lai MC, Balogh R, Chung H, Durbin A, Jachyra P, Tint A, Weiss J, & Lin E. (2022). Premature mortality in a population-based cohort of autistic adults in Canada. Autism Research. https://doi.org/10.1002/aur.2741

Jiwa, M.I., Durbin, J., Pereira, V., Streisslberger, E., Steel, L., and Lunsky, Y. (2022). "This Is About My Health”: Partnering with Patients and Families to Share Knowledge and Tools about Healthcare Communication for Adults with Intellectual and Developmental Disabilities. Healthcare Quarterly. https://www.longwoods.com/content/26766/healthcare-quarterly/-this-is-about-my-health-partnering-with-patients-and-families-to-share-knowledge-and-tools-ab

Matheson, F. I., Dastoori, P., Whittingham, L., Calzavara, A., Keown, L. A., Durbin, A., Kouyoumdjian, F., Lin, E., Volpe, T. & Lunsky, Y. (2022). Intellectual/developmental disabilities among people incarcerated in federal correctional facilities in Ontario, Canada: Examining prevalence, health and correctional characteristics. Journal of Applied Research in Intellectual Disabilities. https://doi.org/10.1111/jar.12995

Selick, A., Durbin, J., Casson, I., Green, L., Abells, D., Bruni, A., Mazurek, M.T., Jiwa, M.I., & Lunsky, Y. (2022). Improving capacity to care for patients with intellectual and developmental disabilities: The value of an experiential learning model for family medicine residents. Disability and Health Journal, 101282. https://doi.org/10.1016/j.dhjo.2022.101282

Lunsky, Y., Jahoda, A., Navas, P., Campanella, S., & Havercamp, S. M. (2022). The mental health and well‐being of adults with intellectual disability during the COVID‐19 pandemic: A narrative review. Journal of Policy and Practice in Intellectual Disabilities.  https://doi.org/10.1111/jppi.12412

Lin, E., Whittingham, L., Busch, L., Calzavara, A., Kouyoumdjian, F., Durbin, A., Matheson, F.I., Dastoori, P., Volpe, T., & Lunsky, Y. (2022). Intensive Use of Forensic Inpatient Services by People with Intellectual and Developmental Disabilities in Ontario, Canada: Prevalence and Associated Characteristics. International Journal of Forensic Mental Health. 1-12. https://doi.org/10.1080/14999013.2022.2027047

Selick, A., Durbin, J., Salonia, C., Volpe, T., Orr, E., Hermans, H., Zarestsky, L., Malhas, M., & Lunsky, Y. (2022). The Nuts and Bolts of Health Care: Evaluating an initiative to build direct support professional capacity to support the health care of individuals with intellectual disabilities. Journal of Applied Research in Intellectual Disabilities. https://doi.org/10.1111/jar.12975

2021

Selick, A., Bobbette, N., Lunsky, Y., Hamdani, Y., Rayner, J., & Durbin, J. (2021). Virtual health care for adult patients with intellectual and developmental disabilities: A scoping review. Disability and Health Journal. 14(4), 101132. https://doi.org/10.1016/j.dhjo.2021.101132

Lake, J. K., Jachyra, P., Volpe, T., Lunsky, Y., Magnacca, C., Marcinkiewicz, A., & Hamdani, Y. (2021). The wellbeing and mental health care experiences of adults with intellectual and developmental disabilities during COVID-19. Journal of Mental Health Research in Intellectual Disabilities, 14(3), 285-300. https://doi.org/10.1080/19315864.2021.1892890

2020

Whittingham, L., Durbin, A., Lin, E., Matheson, F. I., Volpe, T., Dastoori, P., Calzavara, A., Lunsky, Y., & Kouyoumdjian, F. (2020). The prevalence and health status of people with developmental disabilities in provincial prisons in Ontario, Canada: A retrospective cohort study. Journal of Applied Research in Intellectual Disabilities, 33(6), 1368-1379. https://doi.org/10.1111/jar.12757

Redquest, B., Ahmed, S., Balogh, R., & Lunsky, Y. (2020). Preventing and treating diabetes in Canadian adults with intellectual and developmental disabilities. Canadian Journal of Diabetes, 44(2), 205-210. https://doi.org/10.1016/j.jcjd.2019.05.016 

2019

Balogh, R., Leonard, H., Bourke, J., Brameld, K., Downs, J., Hansen, M., Glasson, E., Lin, E., Lloyd, M., Lunsky, Y., O'Donnell, M., Shooshtari, S., Wong, K., and Krahn, G. (2019). Data linkage: Canadian and Australian perspectives on a valuable methodology for intellectual and developmental disability research. Intellectual and Developmental Disabilities, 57(5), 439-462. https://doi.org/10.1352/1934-9556-57.5.439

Brown, H. K., Cobigo, V., Lunsky, Y., & Vigod, S. (2019) Reproductive health in women with intellectual and developemental disabilities in Ontario: Implications for policy and practice. Healthcare Quarterly, 21(4), 6-9. doi:10.12927/hcq.2019.25748

Durbin, A., Balogh, R., Lin, E., Wilton, A.S., Selick, A., Dobranowski, K. M., & Lunsky, Y. (2019). Repeat emergency department visits for individuals with intellectual and developmental disabilities and psychiatric disorders. American Journal on Intellectual and Developmental Disabilities, 124(3), 206-19. https://www.ncbi.nlm.nih.gov/pubmed/31026200

Durbin, A., Jung, J.K.H., Chung, H., Lin, E., Balogh, R., Lunsky, Y. (2019). Prevalence of intellectual and developmental disabilities among first generation adult newcomers, and the health and health service use of this group: A retrospective cohort study. PLoS ONE, 14(6): e0215804. https://doi.org/10.1371/journal.pone.0215804

Durbin, J., Selick, A., Casson, I., Green, L., Perry, A., Abou Chacra, M., & Lunsky, Y. (2019). Improving the quality of primary care for adults with intellectual and developmental disabilities: Value of the periodic health examination. Canadian Family Physician, 65(1), S66-S72.https://www.cfp.ca/content/65/Suppl_1/S66

Gomes, T., Khuu, W., Tadrous, M., Vigod, S., Cobigo, V., & Lunsky, Y. (2019). Antipsychotic initiation among adults with intellectual and developmental disabilities in Ontario: a population-based cohort study. BMJ Open 9:e028125. doi:10.1136/ bmjopen-2018-028125

Lunsky, Y., De Oliveira, C., Wilton, A., and Wodchis, W. (2019). High health care costs among adults with intellectual and developmental disabilities: a population‐based study. Journal of Intellectual Disability Research, 63(2),124-137 https://doi.org/10.1111/jir.12554.

Potvin, L.A., Fulford, C., Ouellette-Kuntz, H., & Cobigo, V. (2019). What adults with developmental disabilities say they need to access annual health examinations: System navigation support and person-centred care. Canadian Family Physician, 65(1), S47-S52.http://www.cfp.ca/content/65/Suppl_1/S47/tab-article-info

Smith, G., Ouellette-Kuntz, H., & Green, M. (2019). Comprehensive preventive care assessments for adults with intellectual and developmental in Ontario- Part 2: 2003-2014. Canadian Family Physician, 65(1), S53-8.http://www.cfp.ca/content/65/Suppl_1/S53

Zworth, M., Selick, A., Durbin J., Casson, I., & Lunsky, Y. (2019). Improving care for adults with intellectual and developmental disabilities: Role of clerical staff. Canadian Family Physician, 65(1), S8-S10. http://www.cfp.ca/content/65/Suppl_1/S8

2018

Balogh, R., Lin, E., Dobranowski, K., Selick, A., Wilton, D., & Lunsky, Y. (2018).  All cause 30-day readmission in persons with intellectual and developmental disabilities, and mental illness. Psychiatric Services, 69(3), 353-357 doi: 10.1176/appi.ps.201600534

Boyd, K., Diepstra, H., Elbard, K., Hamdani, Y., & Lunsky, Y. (2018). Consumer inclusion: Experience of patients with intellectual and developmental disabilities informs primary care. Canadian Family Physician, 64(Suppl 2) S8-S11, http://www.cfp.ca/content/64/Suppl_2/S8

Brown H. K., Kirkham, Y., Lunsky, Y., Cobigo, V., & Vigod, S N. (2018). Contraceptive provision to postpartum women with intellectual and developmental disabilities: A population-based cohort study. Perspectives on Sexual and Reproductive Health, 50(3), 93-99 doi: 10.1363/psrh.12060

Brown, H. K., Potvin, L. A., Lunsky, Y., & Vigod, S. N. (2018). Maternal intellectual or developmental disability and newborn discharge to protective services. Pediatrics, 142(6), 1-12 doi: 10.1542/peds.2018-1416

Brown, H. K., Ray, J. G. Ning, L., Lunsky, Y., & Vigod, S. N. (2018). Rapid repeat pregnancy among women with intellectual and developmental disabilities: a population-based cohort study. Canadian Medical Association Journal, 190(3), E949-E956. doi: https://doi.org/10.1503/cmaj.170932

Casson, I.,  Broda, T., Durbin, J., Gonzales, A., Green, L., Grier, E., Lunsky, Y., Selick, A., & Sue, K. (2018) Health checks for adults with intellectual and developmental disabilities in a family practice. Canadian Family Physician, 64(Suppl 2), S44-S50, http://www.cfp.ca/content/64/Suppl_2/S44

Durbin, A., Balogh, R., Lin, E., Wilton, A. S., Lunsky, Y. (2018). Emergency department use: Common presenting issues and continuity of care for individuals with and without intellectual and developmental disabilities. Journal of Autism and Developmental Disorders, 48(10), 3542-3550, doi: 10.1007/s10803-018-3615-9

Heifetz, M., & Lunsky, Y. (2018). Implementation and evaluation of health passport communication tools in emergency departments. Research in Developmental Disabilities, 72, 23-32. doi:10.1016/j.ridd.2017.10.010 

Koch, K., Lake, J. K., Sandrakumar, J., Lee, J. S., & Lunsky, Y. (2018). Staff experience of an initiative to improve emergency care for patients with developmental disabilities. Journal on Developmental Disabilities, 23(3), 105-108. http://oadd.org/journal/volume-23-number-3-general/

Lunsky, Y., Balogh, R., Durbin A., Selick, A., Volpe, T., & Lin, E. (2018). The mental health of adults with developmental disabilities in Ontario: Lessons from administrative health data. Healthcare Quarterly, 21(1), 6-9 doi: 10.12927/hcq.2018.25521

Ouellette-Kuntz H, Smith G, Fulford C, Cobigo V. (2018). Are we making a difference in primary care for adults with intellectual and developmental disabilities? Rev Panam Salud Publica. 42:e154. doi: 10.26633/RPSP.2018.154

Selick, A., Durbin, J., Casson, I., Lee, J., & Lunsky, Y. (2018). Original qualitative research – Barriers and facilitators to improving health care for adults with intellectual and developmental disabilities: what do staff tell us? Health Promotion and Chronic Disease Prevention in Canada, 38(10), 349-357. doi: 10.24095/hpcdp.38.10.01.

Smith, G., Ouellette-Kuntz, H., & Green, M. (2018). Comprehensive preventive care assessments for adults with intellectual and developmental disabilities. Part 1: How do we know if it is happening? Canadian Family Physician, 64(Suppl 2), S57-S62.http://www.cfp.ca/content/64/Suppl_2/S57.long

Weiss, J. A. Isaacs, B., Diepstra, H., Wilton, A. S., Brown, H. K., McGarry, C. & Lunsky, Y. (2018). Health concerns and health service utilizations in a population cohort of young adults with Autism Spectrum Disorder. Journal of Autism and Developmental Disorders, 48(1), 36-44. doi: 10.1007/s10803-017-3292-0

2017

Balogh, R., Wood, J., Dobranowski, K., Lin, E., Wilton, A., Jaglal, S. B., Gemmill, M., & Lunsky, Y. (2017). Low trauma fractures and bone mineral density testing in adults with and without intellectual and developmental disabilities: A population study. Osteoporosis International, 28(2),727-732. doi:10.1007/s00198-016-3740-2 

Brown, H. K., Cobigo, V., Lunsky, Y., & Vigod, S. N. (2017). Maternal and offspring outcomes in women with intellectual and developmental disabilities: A population-based study. British Journal of Obstetrics and Gynaecology, 124(5), 757-765; doi:10.1111/1471-0528.14120

Brown, H.K., Cobigo, V., Lunsky, Y., & Vigod, S. (2017). Postpartum acute care utilization among women with intellectual and developmental disabilities. Journal of Women’s Health, 26(4), 329-337. doi:10.1089/jwh.2016.5979

Durbin, A., Brown, H. K., Bansal, S., Antoniou, T., Jung, J. K. H., & Lunsky, Y. (2017) How HIV affects health and service use for adults with intellectual and developmental disabilities. Journal of Intellectual Disability Research, 61(7), 682-696. doi:10.1111/jir.12381

Hamdani, Y., Ary, A., & Lunsky, Y. (2017). Critical analysis of a population mental health strategy: effects on stigma for people with intellectual and developmental disabilities. Journal of Mental Health Research in Intellectual Disabilities, 10(2), 144-161. doi:10.1080/19315864.2017.1281362

Jung, J., Durbin, A., Heifetz, M., & Lunsky, Y. (2017) The intersection of intellectual and developmental disabilities and HIV: A scoping review. Journal of Intellectual and Developmental Disability, 42, 1-11. doi: 10.3109/13668250.2017.1395397

Lin, E., Barbaree, H., Selick, A., Ham, E., Wilton, A., & Lunsky, Y. (2017). Intellectual and developmental disabilities (IDD) and Ontario’s forensic inpatient system: A population-based cohort study. Psych Crime Law, 23(9), 914-926. doi:10.1080/1068316X.2017.1346100

Lunsky, Y., Durbin, A., Brown, H.K., Bansal, S., Heifetz, M., & Antonio, T. (2017). Health profiles and associated service use among adults with HIV and intellectual and developmental disabilities. AIDS, 31(5), 697-705. doi:10.1097/QAD.0000000000001361.

Lunsky, Y., Khuu, W., Tadrous, M., Vigod, S., Cobigo, V., & Gomes, T.  (2017). Antipsychotic use among adults with intellectual and developmental disabilities in Ontario. Canadian Journal of Psychiatry, 63(6):361-369. doi: 10.1177/0706743717727240

Martin, L., Ouellette-Kuntz, H., & McKenzie, K. (2017). The power of population health data in aging and intellectual and developmental disabilities: reactions of knowledge users. Journal of Policy and Practice in Intellectual Disabilities, 14(4), 268-278. doi: 10.1111/jppi.12196

McKenzie, K., Ouellette-Kuntz, H., & Martin, L. (2017). Applying a general measure of frailty to assess the aging-related needs of adults with intellectual and developmental disabilities. Journal of Policy and Practice in Intellectual Disabilities, 14 (2), 124-128. doi: 10.1111/jppi.12197

Ouellette-Kuntz, H., Martin, L., & McKenzie, K. (2017). Population aging and intellectual and developmental disabilities: Projections for Canada. Journal of Policy and Practice in Intellectual Disabilities, 13(4), 254-260. doi: 10.1111/jppi.12172

Ouellette-Kuntz, H., Martin, L., & McKenzie, K. (2017). The risk of reinstitutionalization: examining rates of admission to long-term care among adults with intellectual and developmental disabilities over time. Journal of Policy and Practice in Intellectual Disabilities, 14(4), 293-297. doi: 10.1111/jppi.12215

Spassiani, N., Abou Chacra, M. & Lunsky, Y. (2017). “Why are you here? Can’t you cope at home?”: The psychiatric crisis of people with intellectual disabilities and the community’s response. Journal of Mental Health Research in Intellectual Disabilities, 10(2), 74-92. doi:10.1080/19315864.2016.1278290 

2016

Brown, H. K., Cobigo, V., Lunsky, Y., Dennis, C. L., & Vigod, S. (2016) Perinatal health of women with intellectual and developmental disabilities and comorbid mental illness.Canadian Journal of Psychiatry, 61(11), 714-723. doi:10.1177/0706743716649188

Brown, H. K., Lunsky, Y., Cobigo, V., Wilton, D., & Vigod, S. (2016). Pregnancy in women with intellectual and developmental disabilities. Journal of Obstetrics and Gynaecology Canada, 38, 9-16. doi:10.1016/j.jogc.2015.10.004

Durbin, J., Selick, A., Casson, I., Green, L., Spassiani, N., Perry, A., & Lunsky, Y. (2016). Evaluating the implementation of health checks for adults with intellectual and developmental disabilities in primary care: The importance of organizational context. Intellectual and Developmental Disabilities, 54, 136-150. doi:10.1352/1934-9556-54.2.136

Hamdani, Y., & Lunsky, Y. (2016). Health and Health Service Use of Youth and Young Adults with Intellectual and Developmental Disabilities. Current Developmental Disorders Reports, 3(2), 97-103. doi:10.1007/s40474-016-0082-x

Lin, E., Balogh, R. McGarry, C., Selick, A., Dobranowski, K., Wilton, A. S., & Lunsky, Y. (2016) Substance-related and addictive disorders among adults with intellectual and developmental disabilities (IDD): An Ontario population cohort study. BMJ Open, 6 (9), doi:10.1136/bmjopen-2016-011638

McKenzie, K., Ouellette-Kuntz, H. & Martin, L. (2016). Frailty as a predictor of institutionalization among adults with intellectual and developmental disabilities. Intellectual and Developmental Disabilities, 54, 123-135. doi.org/10.1352/1934-9556-54.2.123

Spassiani, N., Sawyer, A., Abou Chacra, M., Koch, K., Munoz, Y., & Lunsky, Y. (2016). "Teaches people that I'm more than a disability:" Using nominal group technique in patient-oriented research for people with intellectual disabilities. Intellectual and Developmental Disabilities, 54, 112-122. doi:10.1352/1934-9556-54.2.112

Vigod, S., Lunsky, Y., Cobigo, V., Wilton, A., Somerton, S., & Seitz, D. (2016). Morbidity and mortality of women and men with intellectual disabilities newly initiating antipsychotic drugs. British Journal of Psychiatry Open, 2, 188-194. doi:10.1192/bjpo.bp.116.002691

2015

Balogh, R., Lake, J. K., Lin, E., Wilton, A., & Lunsky, Y. (2015). Disparities in diabetes prevalence and preventable hospitalizations in persons with intellectual and developmental disability: A population study. Diabetic Medicine, 32, 235-242. doi:10.1111/dme.12573

Brown, H. K., Kirkham, Y., Cobigo, V., Lunsky, Y., & Vigod, S. (2015). Labour and delivery interventions in women with intellectual and developmental disabilities: A population-based cohort study. Journal of Epidemiology & Community Health, 70(3), 238-44 doi:10.1136/jech-2015-206426

Brown, H. K., Plourde, N., Ouellette-Kuntz, H., Vigod, S., & Cobigo, V. (2015). Brief report: Cervical cancer screening in women with intellectual and developmental disabilities who have had a pregnancy. Journal of Intellectual Disability Research, 60(1), 22-27. doi:10.1111/jir.12225

Hatton, C., Bonardi, A., Emerson, E., Fox, M.H., Glover, G., Krahn, G.L., Ouellette-Kuntz, H., & Turner, S. (2015). Health Surveillance and People with Intellectual Disabilities. International Review of Research in Developmental Disabilities, 48, 73-114. doi:10.1016/bs.irrdd.2015.04.002

McKenzie, K., Ouellette-Kuntz, H., & Martin, L. (2015). Using an accumulation of deficits approach to measure frailty in a population of home care users with intellectual and developmental disabilities: an analytical descriptive study. BMC Geriatrics, 15, 170. doi:10.1186/s12877-015-0170-5

McMorris, C., Lake, J. K., Lunsky, Y., Dobranowski, K., Fehlings, D., Bayley, M., McGarry, C., & Balogh, R. (2015). Adults with Cerebral Palsy: Physical and Mental Health Issues and Health Service Use Patterns. International Review of Research in Developmental Disabilities, 48, 116-149, doi:10.1016/bs.irrdd.2015.03.003

Ouellette-Kuntz, H., Cobigo, V., Balogh, R., Wilton, A. & Lunsky, Y. (2015). The Uptake of secondary prevention by adults with intellectual and developmental disabilities. Journal of Applied Research in Intellectual Disabilities, 28, 43–54. doi:10.1111/jar.12133

Ouellette-Kuntz, H., Coo, H., Cobigo, V., & Wilton, A. S. (2015). Uptake of colorectal cancer screening among Ontarians with intellectual and developmental disabilities. PLoS ONE 10: e0118023. doi:10.1371/journal.pone.0118023

Ouellette-Kuntz, H., Martin, L., & McKenzie, K. (2015) Health surveillance in older adults with intellectual and developmental disabilities - a review of special considerations. International Review of Research in Developmental Disabilities, 48, 151-194. doi:10.1016/bs.irrdd.2015.03.004

2014

Lin, E., Balogh, R., Isaacs, B., Ouellette-Kuntz, H., Selick, A., Wilton, A. S., Cobigo, V. & Lunsky, Y. (2014). Strengths and limitations of health and disability support administrative databases for population-based health research in intellectual and developmental disabilities. Journal of Policy and Practice in Intellectual Disabilities, 11, 235–244. doi:10.1111/jppi.12098

Lunsky, Y., Balogh, R., Cobigo, V., Isaacs, B., Lin, E. & Ouellette-Kuntz, H. M. J. (2014). Primary care of adults with developmental disabilities in Ontario. Healthcare Quarterly, 17, 11-13. doi:10.12927/hcq.2014.24026

Lunsky, Y., Balogh, R., Sullivan, W. F., & Jaakkimainen, R. L. (2014). Periodic health examinations for adults with developmental disabilities: Are we doing enough? Canadian Family Physician, 60, 109-110. doi: http://www.cfp.ca/content/60/2/109.full.pdf+html

Lunsky, Y., Lake, J. K., Durbin, J., Perry, A., Bullock, H., Morris, S., & Lee, J. S. (2014). Understanding and improving care for individuals with intellectual and developmental disabilities in the emergency department. International Review of Research in Developmental Disabilities, 47, 1-37. doi:10.1016/B978-0-12-800278-0.00001-4

Stortz, J. N., Lake, J. K., Cobigo, V., Ouellette-Kuntz, H., & Lunsky, Y. (2014).  Lessons learned from our elders: how to study polypharmacy in populations with intellectual and developmental disabilities.  Journal of Intellectual and Developmental Disabilities, 52, 60-77. doi:10.1352/1934-9556-52.1.60

2013