2022
Lake, J., Volpe, T., St. John, L., Thakur, A., Steel, L., Baskin, A., Durbin, A., Chacra, M.A., and Lunsky, Y. (2022). Mental health and COVID-19: The impact of a virtual course for family caregivers of adults with intellectual and developmental disabilities. Journal of Intellectual Disability Research. https://doi.org/10.1111/jir.12965
St. John, L., Volpe, T., Jiwa, M.I., Durbin, A., Safar, Y., Formuli, F., Thakur, A., Lake, J., and Lunsky, Y. (2022). ‘More together than apart’: The evaluation of a virtual course to improve mental health and well‐being of adults with intellectual disabilities during the COVID‐19 pandemic. Journal of Applied Research in Intellectual Disabilities. https://doi.org/10.1111/jar.13024.
Lunsky Y, Lai MC, Balogh R, Chung H, Durbin A, Jachyra P, Tint A, Weiss J, & Lin E. (2022). Premature mortality in a population-based cohort of autistic adults in Canada. Autism Research. https://doi.org/10.1002/aur.2741
Jiwa, M.I., Durbin, J., Pereira, V., Streisslberger, E., Steel, L., and Lunsky, Y. (2022). "This Is About My Health”: Partnering with Patients and Families to Share Knowledge and Tools about Healthcare Communication for Adults with Intellectual and Developmental Disabilities. Healthcare Quarterly. https://www.longwoods.com/content/26766/healthcare-quarterly/-this-is-about-my-health-partnering-with-patients-and-families-to-share-knowledge-and-tools-ab
Matheson, F. I., Dastoori, P., Whittingham, L., Calzavara, A., Keown, L. A., Durbin, A., Kouyoumdjian, F., Lin, E., Volpe, T. & Lunsky, Y. (2022). Intellectual/developmental disabilities among people incarcerated in federal correctional facilities in Ontario, Canada: Examining prevalence, health and correctional characteristics. Journal of Applied Research in Intellectual Disabilities. https://doi.org/10.1111/jar.12995
Selick, A., Durbin, J., Casson, I., Green, L., Abells, D., Bruni, A., Mazurek, M.T., Jiwa, M.I., & Lunsky, Y. (2022). Improving capacity to care for patients with intellectual and developmental disabilities: The value of an experiential learning model for family medicine residents. Disability and Health Journal, 101282. https://doi.org/10.1016/j.dhjo.2022.101282
Lunsky, Y., Jahoda, A., Navas, P., Campanella, S., & Havercamp, S. M. (2022). The mental health and well‐being of adults with intellectual disability during the COVID‐19 pandemic: A narrative review. Journal of Policy and Practice in Intellectual Disabilities. https://doi.org/10.1111/jppi.12412
Lin, E., Whittingham, L., Busch, L., Calzavara, A., Kouyoumdjian, F., Durbin, A., Matheson, F.I., Dastoori, P., Volpe, T., & Lunsky, Y. (2022). Intensive Use of Forensic Inpatient Services by People with Intellectual and Developmental Disabilities in Ontario, Canada: Prevalence and Associated Characteristics. International Journal of Forensic Mental Health. 1-12. https://doi.org/10.1080/14999013.2022.2027047
Selick, A., Durbin, J., Salonia, C., Volpe, T., Orr, E., Hermans, H., Zarestsky, L., Malhas, M., & Lunsky, Y. (2022). The Nuts and Bolts of Health Care: Evaluating an initiative to build direct support professional capacity to support the health care of individuals with intellectual disabilities. Journal of Applied Research in Intellectual Disabilities. https://doi.org/10.1111/jar.12975
2021
Selick, A., Bobbette, N., Lunsky, Y., Hamdani, Y., Rayner, J., & Durbin, J. (2021). Virtual health care for adult patients with intellectual and developmental disabilities: A scoping review. Disability and Health Journal. 14(4), 101132. https://doi.org/10.1016/j.dhjo.2021.101132
Lake, J. K., Jachyra, P., Volpe, T., Lunsky, Y., Magnacca, C., Marcinkiewicz, A., & Hamdani, Y. (2021). The wellbeing and mental health care experiences of adults with intellectual and developmental disabilities during COVID-19. Journal of Mental Health Research in Intellectual Disabilities, 14(3), 285-300. https://doi.org/10.1080/19315864.2021.1892890
2020
Whittingham, L., Durbin, A., Lin, E., Matheson, F. I., Volpe, T., Dastoori, P., Calzavara, A., Lunsky, Y., & Kouyoumdjian, F. (2020). The prevalence and health status of people with developmental disabilities in provincial prisons in Ontario, Canada: A retrospective cohort study. Journal of Applied Research in Intellectual Disabilities, 33(6), 1368-1379. https://doi.org/10.1111/jar.12757
Redquest, B., Ahmed, S., Balogh, R., & Lunsky, Y. (2020). Preventing and treating diabetes in Canadian adults with intellectual and developmental disabilities. Canadian Journal of Diabetes, 44(2), 205-210. https://doi.org/10.1016/j.jcjd.2019.05.016
2019
Balogh, R., Leonard, H., Bourke, J., Brameld, K., Downs, J., Hansen, M., Glasson, E., Lin, E., Lloyd, M., Lunsky, Y., O'Donnell, M., Shooshtari, S., Wong, K., and Krahn, G. (2019). Data linkage: Canadian and Australian perspectives on a valuable methodology for intellectual and developmental disability research. Intellectual and Developmental Disabilities, 57(5), 439-462. https://doi.org/10.1352/1934-9556-57.5.439
Brown, H. K., Cobigo, V., Lunsky, Y., & Vigod, S. (2019) Reproductive health in women with intellectual and developemental disabilities in Ontario: Implications for policy and practice. Healthcare Quarterly, 21(4), 6-9. doi:10.12927/hcq.2019.25748
Durbin, A., Balogh, R., Lin, E., Wilton, A.S., Selick, A., Dobranowski, K. M., & Lunsky, Y. (2019). Repeat emergency department visits for individuals with intellectual and developmental disabilities and psychiatric disorders. American Journal on Intellectual and Developmental Disabilities, 124(3), 206-19. https://www.ncbi.nlm.nih.gov/pubmed/31026200
Durbin, A., Jung, J.K.H., Chung, H., Lin, E., Balogh, R., Lunsky, Y. (2019). Prevalence of intellectual and developmental disabilities among first generation adult newcomers, and the health and health service use of this group: A retrospective cohort study. PLoS ONE, 14(6): e0215804. https://doi.org/10.1371/journal.pone.0215804
Durbin, J., Selick, A., Casson, I., Green, L., Perry, A., Abou Chacra, M., & Lunsky, Y. (2019). Improving the quality of primary care for adults with intellectual and developmental disabilities: Value of the periodic health examination. Canadian Family Physician, 65(1), S66-S72.https://www.cfp.ca/content/65/Suppl_1/S66
Gomes, T., Khuu, W., Tadrous, M., Vigod, S., Cobigo, V., & Lunsky, Y. (2019). Antipsychotic initiation among adults with intellectual and developmental disabilities in Ontario: a population-based cohort study. BMJ Open 9:e028125. doi:10.1136/ bmjopen-2018-028125
Lunsky, Y., De Oliveira, C., Wilton, A., and Wodchis, W. (2019). High health care costs among adults with intellectual and developmental disabilities: a population‐based study. Journal of Intellectual Disability Research, 63(2),124-137 https://doi.org/10.1111/jir.12554.
Potvin, L.A., Fulford, C., Ouellette-Kuntz, H., & Cobigo, V. (2019). What adults with developmental disabilities say they need to access annual health examinations: System navigation support and person-centred care. Canadian Family Physician, 65(1), S47-S52.http://www.cfp.ca/content/65/Suppl_1/S47/tab-article-info
Smith, G., Ouellette-Kuntz, H., & Green, M. (2019). Comprehensive preventive care assessments for adults with intellectual and developmental in Ontario- Part 2: 2003-2014. Canadian Family Physician, 65(1), S53-8.http://www.cfp.ca/content/65/Suppl_1/S53
Zworth, M., Selick, A., Durbin J., Casson, I., & Lunsky, Y. (2019). Improving care for adults with intellectual and developmental disabilities: Role of clerical staff. Canadian Family Physician, 65(1), S8-S10. http://www.cfp.ca/content/65/Suppl_1/S8
2018
Balogh, R., Lin, E., Dobranowski, K., Selick, A., Wilton, D., & Lunsky, Y. (2018). All cause 30-day readmission in persons with intellectual and developmental disabilities, and mental illness. Psychiatric Services, 69(3), 353-357 doi: 10.1176/appi.ps.201600534
Boyd, K., Diepstra, H., Elbard, K., Hamdani, Y., & Lunsky, Y. (2018). Consumer inclusion: Experience of patients with intellectual and developmental disabilities informs primary care. Canadian Family Physician, 64(Suppl 2) S8-S11, http://www.cfp.ca/content/64/Suppl_2/S8
Brown H. K., Kirkham, Y., Lunsky, Y., Cobigo, V., & Vigod, S N. (2018). Contraceptive provision to postpartum women with intellectual and developmental disabilities: A population-based cohort study. Perspectives on Sexual and Reproductive Health, 50(3), 93-99 doi: 10.1363/psrh.12060
Brown, H. K., Potvin, L. A., Lunsky, Y., & Vigod, S. N. (2018). Maternal intellectual or developmental disability and newborn discharge to protective services. Pediatrics, 142(6), 1-12 doi: 10.1542/peds.2018-1416
Brown, H. K., Ray, J. G. Ning, L., Lunsky, Y., & Vigod, S. N. (2018). Rapid repeat pregnancy among women with intellectual and developmental disabilities: a population-based cohort study. Canadian Medical Association Journal, 190(3), E949-E956. doi: https://doi.org/10.1503/cmaj.170932
Casson, I., Broda, T., Durbin, J., Gonzales, A., Green, L., Grier, E., Lunsky, Y., Selick, A., & Sue, K. (2018) Health checks for adults with intellectual and developmental disabilities in a family practice. Canadian Family Physician, 64(Suppl 2), S44-S50, http://www.cfp.ca/content/64/Suppl_2/S44
Durbin, A., Balogh, R., Lin, E., Wilton, A. S., Lunsky, Y. (2018). Emergency department use: Common presenting issues and continuity of care for individuals with and without intellectual and developmental disabilities. Journal of Autism and Developmental Disorders, 48(10), 3542-3550, doi: 10.1007/s10803-018-3615-9
Heifetz, M., & Lunsky, Y. (2018). Implementation and evaluation of health passport communication tools in emergency departments. Research in Developmental Disabilities, 72, 23-32. doi:10.1016/j.ridd.2017.10.010
Koch, K., Lake, J. K., Sandrakumar, J., Lee, J. S., & Lunsky, Y. (2018). Staff experience of an initiative to improve emergency care for patients with developmental disabilities. Journal on Developmental Disabilities, 23(3), 105-108. http://oadd.org/journal/volume-23-number-3-general/
Lunsky, Y., Balogh, R., Durbin A., Selick, A., Volpe, T., & Lin, E. (2018). The mental health of adults with developmental disabilities in Ontario: Lessons from administrative health data. Healthcare Quarterly, 21(1), 6-9 doi: 10.12927/hcq.2018.25521
Ouellette-Kuntz H, Smith G, Fulford C, Cobigo V. (2018). Are we making a difference in primary care for adults with intellectual and developmental disabilities? Rev Panam Salud Publica. 42:e154. doi: 10.26633/RPSP.2018.154
Selick, A., Durbin, J., Casson, I., Lee, J., & Lunsky, Y. (2018). Original qualitative research – Barriers and facilitators to improving health care for adults with intellectual and developmental disabilities: what do staff tell us? Health Promotion and Chronic Disease Prevention in Canada, 38(10), 349-357. doi: 10.24095/hpcdp.38.10.01.
Smith, G., Ouellette-Kuntz, H., & Green, M. (2018). Comprehensive preventive care assessments for adults with intellectual and developmental disabilities. Part 1: How do we know if it is happening? Canadian Family Physician, 64(Suppl 2), S57-S62.http://www.cfp.ca/content/64/Suppl_2/S57.long
Weiss, J. A. Isaacs, B., Diepstra, H., Wilton, A. S., Brown, H. K., McGarry, C. & Lunsky, Y. (2018). Health concerns and health service utilizations in a population cohort of young adults with Autism Spectrum Disorder. Journal of Autism and Developmental Disorders, 48(1), 36-44. doi: 10.1007/s10803-017-3292-0
2017
Balogh, R., Wood, J., Dobranowski, K., Lin, E., Wilton, A., Jaglal, S. B., Gemmill, M., & Lunsky, Y. (2017). Low trauma fractures and bone mineral density testing in adults with and without intellectual and developmental disabilities: A population study. Osteoporosis International, 28(2),727-732. doi:10.1007/s00198-016-3740-2
Brown, H. K., Cobigo, V., Lunsky, Y., & Vigod, S. N. (2017). Maternal and offspring outcomes in women with intellectual and developmental disabilities: A population-based study. British Journal of Obstetrics and Gynaecology, 124(5), 757-765; doi:10.1111/1471-0528.14120
Brown, H.K., Cobigo, V., Lunsky, Y., & Vigod, S. (2017). Postpartum acute care utilization among women with intellectual and developmental disabilities. Journal of Women’s Health, 26(4), 329-337. doi:10.1089/jwh.2016.5979
Durbin, A., Brown, H. K., Bansal, S., Antoniou, T., Jung, J. K. H., & Lunsky, Y. (2017) How HIV affects health and service use for adults with intellectual and developmental disabilities. Journal of Intellectual Disability Research, 61(7), 682-696. doi:10.1111/jir.12381
Hamdani, Y., Ary, A., & Lunsky, Y. (2017). Critical analysis of a population mental health strategy: effects on stigma for people with intellectual and developmental disabilities. Journal of Mental Health Research in Intellectual Disabilities, 10(2), 144-161. doi:10.1080/19315864.2017.1281362
Jung, J., Durbin, A., Heifetz, M., & Lunsky, Y. (2017) The intersection of intellectual and developmental disabilities and HIV: A scoping review. Journal of Intellectual and Developmental Disability, 42, 1-11. doi: 10.3109/13668250.2017.1395397
Lin, E., Barbaree, H., Selick, A., Ham, E., Wilton, A., & Lunsky, Y. (2017). Intellectual and developmental disabilities (IDD) and Ontario’s forensic inpatient system: A population-based cohort study. Psych Crime Law, 23(9), 914-926. doi:10.1080/1068316X.2017.1346100
Lunsky, Y., Durbin, A., Brown, H.K., Bansal, S., Heifetz, M., & Antonio, T. (2017). Health profiles and associated service use among adults with HIV and intellectual and developmental disabilities. AIDS, 31(5), 697-705. doi:10.1097/QAD.0000000000001361.
Lunsky, Y., Khuu, W., Tadrous, M., Vigod, S., Cobigo, V., & Gomes, T. (2017). Antipsychotic use among adults with intellectual and developmental disabilities in Ontario. Canadian Journal of Psychiatry, 63(6):361-369. doi: 10.1177/0706743717727240
Martin, L., Ouellette-Kuntz, H., & McKenzie, K. (2017). The power of population health data in aging and intellectual and developmental disabilities: reactions of knowledge users. Journal of Policy and Practice in Intellectual Disabilities, 14(4), 268-278. doi: 10.1111/jppi.12196
McKenzie, K., Ouellette-Kuntz, H., & Martin, L. (2017). Applying a general measure of frailty to assess the aging-related needs of adults with intellectual and developmental disabilities. Journal of Policy and Practice in Intellectual Disabilities, 14 (2), 124-128. doi: 10.1111/jppi.12197
Ouellette-Kuntz, H., Martin, L., & McKenzie, K. (2017). Population aging and intellectual and developmental disabilities: Projections for Canada. Journal of Policy and Practice in Intellectual Disabilities, 13(4), 254-260. doi: 10.1111/jppi.12172
Ouellette-Kuntz, H., Martin, L., & McKenzie, K. (2017). The risk of reinstitutionalization: examining rates of admission to long-term care among adults with intellectual and developmental disabilities over time. Journal of Policy and Practice in Intellectual Disabilities, 14(4), 293-297. doi: 10.1111/jppi.12215
Spassiani, N., Abou Chacra, M. & Lunsky, Y. (2017). “Why are you here? Can’t you cope at home?”: The psychiatric crisis of people with intellectual disabilities and the community’s response. Journal of Mental Health Research in Intellectual Disabilities, 10(2), 74-92. doi:10.1080/19315864.2016.1278290
2016
Brown, H. K., Cobigo, V., Lunsky, Y., Dennis, C. L., & Vigod, S. (2016) Perinatal health of women with intellectual and developmental disabilities and comorbid mental illness.Canadian Journal of Psychiatry, 61(11), 714-723. doi:10.1177/0706743716649188
Brown, H. K., Lunsky, Y., Cobigo, V., Wilton, D., & Vigod, S. (2016). Pregnancy in women with intellectual and developmental disabilities. Journal of Obstetrics and Gynaecology Canada, 38, 9-16. doi:10.1016/j.jogc.2015.10.004
Durbin, J., Selick, A., Casson, I., Green, L., Spassiani, N., Perry, A., & Lunsky, Y. (2016). Evaluating the implementation of health checks for adults with intellectual and developmental disabilities in primary care: The importance of organizational context. Intellectual and Developmental Disabilities, 54, 136-150. doi:10.1352/1934-9556-54.2.136
Hamdani, Y., & Lunsky, Y. (2016). Health and Health Service Use of Youth and Young Adults with Intellectual and Developmental Disabilities. Current Developmental Disorders Reports, 3(2), 97-103. doi:10.1007/s40474-016-0082-x
Lin, E., Balogh, R. McGarry, C., Selick, A., Dobranowski, K., Wilton, A. S., & Lunsky, Y. (2016) Substance-related and addictive disorders among adults with intellectual and developmental disabilities (IDD): An Ontario population cohort study. BMJ Open, 6 (9), doi:10.1136/bmjopen-2016-011638
McKenzie, K., Ouellette-Kuntz, H. & Martin, L. (2016). Frailty as a predictor of institutionalization among adults with intellectual and developmental disabilities. Intellectual and Developmental Disabilities, 54, 123-135. doi.org/10.1352/1934-9556-54.2.123
Spassiani, N., Sawyer, A., Abou Chacra, M., Koch, K., Munoz, Y., & Lunsky, Y. (2016). "Teaches people that I'm more than a disability:" Using nominal group technique in patient-oriented research for people with intellectual disabilities. Intellectual and Developmental Disabilities, 54, 112-122. doi:10.1352/1934-9556-54.2.112
Vigod, S., Lunsky, Y., Cobigo, V., Wilton, A., Somerton, S., & Seitz, D. (2016). Morbidity and mortality of women and men with intellectual disabilities newly initiating antipsychotic drugs. British Journal of Psychiatry Open, 2, 188-194. doi:10.1192/bjpo.bp.116.002691
2015
Balogh, R., Lake, J. K., Lin, E., Wilton, A., & Lunsky, Y. (2015). Disparities in diabetes prevalence and preventable hospitalizations in persons with intellectual and developmental disability: A population study. Diabetic Medicine, 32, 235-242. doi:10.1111/dme.12573
Brown, H. K., Kirkham, Y., Cobigo, V., Lunsky, Y., & Vigod, S. (2015). Labour and delivery interventions in women with intellectual and developmental disabilities: A population-based cohort study. Journal of Epidemiology & Community Health, 70(3), 238-44 doi:10.1136/jech-2015-206426
Brown, H. K., Plourde, N., Ouellette-Kuntz, H., Vigod, S., & Cobigo, V. (2015). Brief report: Cervical cancer screening in women with intellectual and developmental disabilities who have had a pregnancy. Journal of Intellectual Disability Research, 60(1), 22-27. doi:10.1111/jir.12225
Hatton, C., Bonardi, A., Emerson, E., Fox, M.H., Glover, G., Krahn, G.L., Ouellette-Kuntz, H., & Turner, S. (2015). Health Surveillance and People with Intellectual Disabilities. International Review of Research in Developmental Disabilities, 48, 73-114. doi:10.1016/bs.irrdd.2015.04.002
McKenzie, K., Ouellette-Kuntz, H., & Martin, L. (2015). Using an accumulation of deficits approach to measure frailty in a population of home care users with intellectual and developmental disabilities: an analytical descriptive study. BMC Geriatrics, 15, 170. doi:10.1186/s12877-015-0170-5
McMorris, C., Lake, J. K., Lunsky, Y., Dobranowski, K., Fehlings, D., Bayley, M., McGarry, C., & Balogh, R. (2015). Adults with Cerebral Palsy: Physical and Mental Health Issues and Health Service Use Patterns. International Review of Research in Developmental Disabilities, 48, 116-149, doi:10.1016/bs.irrdd.2015.03.003
Ouellette-Kuntz, H., Cobigo, V., Balogh, R., Wilton, A. & Lunsky, Y. (2015). The Uptake of secondary prevention by adults with intellectual and developmental disabilities. Journal of Applied Research in Intellectual Disabilities, 28, 43–54. doi:10.1111/jar.12133
Ouellette-Kuntz, H., Coo, H., Cobigo, V., & Wilton, A. S. (2015). Uptake of colorectal cancer screening among Ontarians with intellectual and developmental disabilities. PLoS ONE 10: e0118023. doi:10.1371/journal.pone.0118023
Ouellette-Kuntz, H., Martin, L., & McKenzie, K. (2015) Health surveillance in older adults with intellectual and developmental disabilities - a review of special considerations. International Review of Research in Developmental Disabilities, 48, 151-194. doi:10.1016/bs.irrdd.2015.03.004
2014
Lin, E., Balogh, R., Isaacs, B., Ouellette-Kuntz, H., Selick, A., Wilton, A. S., Cobigo, V. & Lunsky, Y. (2014). Strengths and limitations of health and disability support administrative databases for population-based health research in intellectual and developmental disabilities. Journal of Policy and Practice in Intellectual Disabilities, 11, 235–244. doi:10.1111/jppi.12098
Lunsky, Y., Balogh, R., Cobigo, V., Isaacs, B., Lin, E. & Ouellette-Kuntz, H. M. J. (2014). Primary care of adults with developmental disabilities in Ontario. Healthcare Quarterly, 17, 11-13. doi:10.12927/hcq.2014.24026
Lunsky, Y., Balogh, R., Sullivan, W. F., & Jaakkimainen, R. L. (2014). Periodic health examinations for adults with developmental disabilities: Are we doing enough? Canadian Family Physician, 60, 109-110. doi: http://www.cfp.ca/content/60/2/109.full.pdf+html
Lunsky, Y., Lake, J. K., Durbin, J., Perry, A., Bullock, H., Morris, S., & Lee, J. S. (2014). Understanding and improving care for individuals with intellectual and developmental disabilities in the emergency department. International Review of Research in Developmental Disabilities, 47, 1-37. doi:10.1016/B978-0-12-800278-0.00001-4
Stortz, J. N., Lake, J. K., Cobigo, V., Ouellette-Kuntz, H., & Lunsky, Y. (2014). Lessons learned from our elders: how to study polypharmacy in populations with intellectual and developmental disabilities. Journal of Intellectual and Developmental Disabilities, 52, 60-77. doi:10.1352/1934-9556-52.1.60
2013
Cobigo, V., Ouellette-Kuntz, H., Balogh, R., Leung, F., Lin, E., & Lunsky, Y. (2013). Are cervical and breast cancer screening programs equitable? The case of women with intellectual and developmental disabilities. Journal of Intellectual Disability Research, 57(5), 478-488. doi:10.1111/jir.12035
Lin, E., Balogh, R., Cobigo, V., Ouellette-Kuntz, H., Wilton, A., & Lunsky, Y. (2013). Using health administrative data to identify individuals with developmental disabilities: A comparison of algorithms. Journal of Intellectual Disability Research, 57(5), 462-477. doi:10.1111/jir.12002
ICES Infographics
The following infographics created by the Institute for Clinicial and Evaluative Sciences (ICES) highlight findings from our research. Click the images to enlarge
Care quality concerns for people with intellectual and developmental disabilities