Kettle and Stony Point First Nation data collection September 2012–January 2013
Aamjiwnaang First Nation data collection February–June 2013.
Data collection in First Nations Communities
For research in First Nations communities, numerous key amendments were made to the study instruments and protocols to reflect CAMH's commitment to partnership in research and to research that is strengths-based, respectful, policy-relevant, and looks at health challenges within a social determinants of Aboriginal peoples' health framework. This includes the social, political, and economic inequalities and health disparities experienced by First Nations people in Canada.
In two First Nations communities (Kettle and Stony Point First Nation and Aamjiwnaang First Nation), we have developed the community survey with special considerations as they pertain to First Nations. We have revised our questionnaire to include measures of particular relevance to First Nations individuals and communities. The revised questionnaire includes culturally appropriate measures related to: community strengths and challenges; historical loss and unresolved grief; attendance at and the intergenerational impact of residential and Indian day schools; social capital; and racism.
The Consumer Journey (CJ) study allows for important insights regarding consumers' experiences seeking and receiving help for mental health, substance use and violence (MSV) problems. As with the community survey, the CJ study has been adapted to capture issues of particular relevance to First Nations. For example, we included in the interview questions that capture resilience and the ability of First Nations people to overcome adversity. Through in-depth interviews in Kettle and Stony Point, we have obtained detailed information on individuals' experiences in the system and are currently examining how well individuals with MSV problems are served by their local systems of care.
To ensure that the research addresses local needs and that knowledge gained through the project is transferred back to the communities, RHOC investigators consult with individuals and organizations in participating communities. In both Kettle and Stony Point First Nation and Aamjiwnaang First Nation, an advisory committee was established to provide input on local research projects prior to and throughout the implementation of research. Importantly, RHOC/Five Views investigators will continue to work with the local advisory committees and other community partners in applying research knowledge to service planning.
A community forum to present the findings is scheduled for winter 2013/2014.